Tracey's youngest son Corey (who I have mentioned once before) is 16. He also has duchenne muscular dystrophy. Muscular dystrophy is a degenerative disease that attacks muscles...eventually freezing them into place. That is the cliff notes version. While some boys (primarily boys) live to be 30, usually life expectancy is late teens, early 20's. After Tracey's divorce, Corey and Kayla (18) went to live with the ex. Unfortunately during this time, the ex hasnt cared for Corey the way a mother should or would. I could list some pretty sad instances of that, but I won't right now.
Corey is in the hospital. Last week they called an ambulance to pick him up. He had been sick with cold/flu like symptoms for over a week. The ambulance was more feasible bc his legs are frozen in a triangle position, and it hurts to move him. He has not left his bed in almost 2 years. While the doctors have not given us a definite prognoses yet, Tracey received a call today that he needed to come to the hospital right away to discuss end of life, DNR, etc. Tracey was working 2 hours away, and should be back soon.
Corey is awake. But his lungs are having trouble breathing for him. This is such a hard time for Tracey. As many of you with kids can imagine (even those of us without). I was doing good until today. I think everything is catching up with me. There are so many mixed emotions inside. I broke down putting up the Christmas tree bc I didnt know if it was selfish of me to celebrate while he is hurting. Of course Tracey told me that he loves the tree and it helps him to keep his mind off of things.
We aren't going out of town for Thanksgiving like planned. And I feel bad for being a little sad about that. But I completely understand!
Also on the table is the possibility of the ex losing custody of Corey due to child neglect. And that could open so many different things.
I have also been trying to find out about burial arrangements if it comes to that.
With all that said, you guy's know that I don't believe in worrying too much about any given thing. Life has a funny way of sneaking up on you...and the stuff you worry about never happens, and the stuff that you never worry about smacks you in the face! So we are taking one day at a time. I just wanted to share with all of you so if something does happen...you knew a little of the back story!
Love you and thanks for reading,